MEDPANEL, INC., LAUNCHES RAREDISEASEMATTERS.COM

CAMBRIDGE, MA – 02-21-2019 (PRDistribution.com) — OFFERING RESEARCH, CONSULTING AND PATIENT RECRUITMENT

MedPanel, Inc., today announced the launch of a new division, rarediseasematters.com, which will provide research, consulting, and patient recruitment for pharmaceutical and biotechnology companies addressing the needs of patients with rare diseases.

 

“MedPanel has always been an industry leader in conducting market research in the rare disease space,” said MedPanel President Janet Bernard. “Now, with RareDiseaseMatters.com, we’re formalizing those efforts more broadly to support the growing needs of our customers.”

 

A rare disease is defined as one that affects a small percentage of a population. In Europe, a disease is defined as rare when it affects fewer than 1 in 2000 people; in the United States, when it affects fewer than 200,000 people at any given time. 

 

More than 7,000 rare diseases are identified in the international disease database, including Alzheimer’s Disease, Cystic Fibrosis, Hodgkin’s Disease, Malignant Melanoma, Multiple Sclerosis, and Ulcerative Colitis. 

 

The announcement precedes the February 24th-28th “Rare Disease Week on Capitol Hill Legislative Conference,” whose attendees include healthcare industry representatives, patients, caregivers, and advocacy organizations. 

 

“As a market researcher, but more importantly as a nurse and patient advocate, it’s important that all of us working in healthcare come together to support the rare disease community,” said Kathleen Poulos, who is a melanoma survivor. 

 

Rare Disease Statistics

Source: globalgenes.org

 

“Over the years, the MedPanel team has developed expertise in rare disease patient recruitment and research,” said Poulos. “With RareDiseaseMatters.com, we’ll use those insights to amplify patients’ voices and connect them with our clients who are working to develop therapeutic treatments that could significantly change their lives.”

Media Contacts:

Company Name: MedPanel, Inc.
Full Name: Kathleen Poulos
Phone: 949.285.6375
Email Address: Send Email
Website: www.medpanel.com

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About the Author: Carrie Brunner

Carrie Brunner grew up in a small town in northern New Brunswick. She studied chemistry in college, graduated, and married her husband one month later. They were then blessed with two baby boys within the first four years of marriage. Having babies gave their family a desire to return to the old paths – to nourish their family with traditional, homegrown foods; rid their home of toxic chemicals and petroleum products; and give their boys a chance to know a simple, sustainable way of life. They are currently building a homestead from scratch on two little acres in central Texas. There’s a lot to be done to become somewhat self-sufficient, but they are debt-free and get to spend their days living this simple, good life together with their five young children. Carrie writes mostly on provincial stories.
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